BLA Recovery (Addisons)

5 weeks ago I had some organs ripped out of my body.  Doesn't that sound crazy? Ok, so 5 weeks ago I had a Bilateral Adrenalectomy where a surgeon (not some back alley surgeon) took out my adrenals. I went from having Cushings Disease to having Addisons. It was the best thing I ever did.

I am amazed at how tired I am. Seriously exhausted. I don't have my chipper jump around talkative self yet. Its coming but its not here yet. I feel like I always want to sleep and I always want to lay down. I did have an open surgery on one side of my body so I am recovering from that however.


I have gone from never sleeping with Cushings to sleeping 19 hours a day for the first two weeks. Five weeks later I think I sleep 12-14 hours and that is me trying to keep myself awake. I know it will subside in the next coming weeks but I am curious how long this will take.


I feel like I am pretty adverse to Cushings and all the things you learn about it through your sickness. Now its like I have a whole new ball game of having to relearn and teach myself about Addisons. I know the important things. Take my medicine at 8 and 2 everyday and NEVER skip a dose. My body does not create cortisol at all. So basically from what I have read if I don't take cortisol for two days or even one I will be in a coma. Lets hope the Zombie Apocalypse never happens because I will be dead from stress or not having medicine for the rest of my life ha! I think I have been watching Walking Dead too much lately.


Symptoms of Addisons:
Chronic Fatigue (check)
Loss of Appetite (check but its coming back finally)
Low Blood Pressure
Dizziness (check)
Darkening of Skin
Nausea (check)
Vomiting
Diarrhea
Inability to cope with Stress
Moodiness (check....my hormones are still straightening out)
Intolerance to heat or cold ( CHECK!)
Craving Salty Foods


Some of these I will have for the rest of my life. Some may dissipate and go away in time. I am learning and trying to figure out my way through this. I am hoping as time goes by I will be less tired and have more energy. I got this! With the support of my family I have this even more! Addisons you and I will be friends but its going to be a good friendship....not one where you drag me down to having crisis. Lets just be friendly!

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