I am finally home! After a week in the hospital from Severe Bronchitis I was a released a few days ago. I am down from taking breathing treatments every hour on the hour to every four hours now. I am so happy to be in my own house, in my own bed, with my family.
Thank you everyone who came to visit, called or prayed for me. I am so thankful for the many friends and family that I have. I am feeling much better even though I have to take it easy for awhile still. At least I am home.
Its been two days and my husband and Mother in Law wont let me lift a finger. Its hard because I am someone who wants to do everything. Like today I feel horrible because my son is having his awards ceremony and I am not there. Makes you feel like a bad parent. Although as I was told if I don't get better then I am missing out on more.
I am so thankful for my Mother in Law and my husband. They don't push me to get better faster rather they make it so I am ABLE to get better faster. We are all being pampered with my MIL good cooking and my house is staying clean so I don't fret. She is a God send. My husband is so sweet and make sure I have anything I need. I am getting better which is good. Can almost walk around my house without weezing to death. Craziness I know. Guess this is what happens when you have a low immune system from Cushings. Thank goodness I am on the other side of this all.
Just wanted to thank you all for your prayers. This is short and to the point but wanted everyone to know I am ok:)
My name is Rae! I am a mother of four teenagers (3boys and one girl), wife to an amazing husband who oversees 9000 acres of ranching. I am in remission from a brain tumor caused by a Rare Disease called Cushings. This is my diary of my life as a Mom,Wife and friend. I write how I talk so beware. This is everyday Rae Rae!
Showing posts with label hospital. Show all posts
Showing posts with label hospital. Show all posts
Thursday, February 19, 2015
Sunday, February 15, 2015
Hospital Valentines...Best one Ever
The love day! Valentines Day. Its that time once a year that is dreaded by many or such an exciting day for others. I happen to love Valentines Day. Always have. Regardless if I had a boyfriend or not. Just always kind of liked the idea of having a day that others put forth that effort to show their love.
Now for me I don't think you need a day like that. I think if you love someone whether its your spouse, kids, family, friends....you show them in a daily way. Its nice to have a day though that you can really get together with the rest of the USA and have a love day though.
So as many of you know I am still in the hospital from Bronchitis and Asthma. Those two just do not mix lol. Been here now for 6 days and really am ready to go home. No girl wants to be in the hospital an hour away from their family anyways but especially not on a holiday. Hospitals don't spell out romance to me....does it to you? ha!
The day was full anyways with my son having a couple games which thankfully where close to the hospital. I didn't get to go of course but my friends were there and helping cheer on with the rest of our family. Taking pictures and sending me videos so I felt like I was there. I got a lot of visitors too which was great to see their smiling faces.
Best part was I got to see all four of my kids at once. I really miss them and its hard when they are all so active in sports and activities to get them here all at once. I really do love my teens and have been struggling with the fact that I am not at home with them. Ryan has had to really do so much to keep work and all the stuff I do going for the family. He is amazing but he has the help of my Mother In Law who really has helped to keep things going and help to keep him insane while they are doing it all too. Our lives are crazy busy. Its not an easy task and I appreciate so much what they are doing to keep things in line and keep it going! I love them.
The kids had a good Valentines also. They gave stuff to their friends and/0r Girlfriend/Boyfriends. Its cute to see young love. I am always amazed at all the stuff they try and get each other. I know they learned that from Ryan though because he is a romantic at heart.
He is that type of guy that shows me love everyday. Usually in small ways that win my heart everyday. I try to do the same. We are always trying to water each others gardens, take out the weeds and fertilize our love. I think you have too. Its about the little things in life. You can have a great spouse but if the only day they are doing something romantic is the one day of the year Valentines day....I think I would pass. I would rather fun sweet little moments everyday than one big one once a year.
I am blessed though because I got both. So lets go back .....I am in the hospital. Not really breathing the best, not wanting to even be here and kind of bummed because its a holiday. Ryan brought all the kids to see me but they were all really tired after their days. So I sent them all home. Ryan said he would come back later and bring me dinner at least. He already gave me this huge card that was like the size of my pillow lol and chocolates. We had agreed to celebrate later even though made him a card and a couple of "romantic" coupons for him to use later like going to the movies and sushi or a back massage. Hey its hard to get resources when you cant leave lol.
Ok, fast forward. I get text saying he is on his way. I get excited just to see his face and to know I will be eating dinner with them. What happened next though blew my mind. He walked in hands full. Put Sparkling Cider and two wine glasses on my hospital tray. He was dressed up and gave me a bad with some comfy but not pj clothes in it to change into. Pulled out a picnic blanket tablecloth and brought Christmas lights. He brought the whole romantic dinner to me. I was blown away. He said to get dressed and he would be back. When he came back he was carrying food from the Niles Hotel that is close by and started setting everything up. Man he looked handsome. I was so taken a back by this gesture. I put on "Sweet Jane" this song we like on my IPhone and he shut off the lights and we sat there by dim light eating filet mignon, amazing green beans, salad, crusted bread, baked potato. It was all so delicious. So romantic. Yep ladies and gentleman I cried. Then I had a breathing issue moment where I was like great....I am ruining all of this. He just rubbed my back and helped me and told me how much he loves me. I just looked at him with tears in my eyes and said he knows how he "takes my breathe away". I love this man. Its hard to surprise me because I am like a secret detective by heart. This definitely surprised me. You should of seen how many nurses snuck in to see the set up lol. It was really cute. I love to brag about my husband because he is the genuine thing. He loves me and I love him. It might of taken me to 30 years old to find him but it was so worth it! Do we have our normal ups and downs. Yes of course....we aren't romantic robots but 99 percent of the time its grand. When he was packing up to get back to the kids I was thinking I didn't want him to leave of course. I wasn't unhappy though because I knew that I would be thinking of this all night long. He did good! He did great! He made me feel like there was no hospital. That there was just the two of us being catered. I am one lucky lady! I am glad I have a strong future ahead of me of showing him everyday how much I love him! Cant wait till he sees the present I had shipped to the house for him. He is going to love it.
So yes....being in the hospital was my best Valentines day. No wonder all my kids are such romantics at heart. They have a great role model to look up too.....
Subscribe anytime...its free. Go to the home page and put in your email. Everytime a blog comes out you will receive one email. Unsubscribe at anytime. Now go do something cool for your Valentine.....
Now for me I don't think you need a day like that. I think if you love someone whether its your spouse, kids, family, friends....you show them in a daily way. Its nice to have a day though that you can really get together with the rest of the USA and have a love day though.
So as many of you know I am still in the hospital from Bronchitis and Asthma. Those two just do not mix lol. Been here now for 6 days and really am ready to go home. No girl wants to be in the hospital an hour away from their family anyways but especially not on a holiday. Hospitals don't spell out romance to me....does it to you? ha!
The day was full anyways with my son having a couple games which thankfully where close to the hospital. I didn't get to go of course but my friends were there and helping cheer on with the rest of our family. Taking pictures and sending me videos so I felt like I was there. I got a lot of visitors too which was great to see their smiling faces.
Best part was I got to see all four of my kids at once. I really miss them and its hard when they are all so active in sports and activities to get them here all at once. I really do love my teens and have been struggling with the fact that I am not at home with them. Ryan has had to really do so much to keep work and all the stuff I do going for the family. He is amazing but he has the help of my Mother In Law who really has helped to keep things going and help to keep him insane while they are doing it all too. Our lives are crazy busy. Its not an easy task and I appreciate so much what they are doing to keep things in line and keep it going! I love them.
The kids had a good Valentines also. They gave stuff to their friends and/0r Girlfriend/Boyfriends. Its cute to see young love. I am always amazed at all the stuff they try and get each other. I know they learned that from Ryan though because he is a romantic at heart.
I am blessed though because I got both. So lets go back .....I am in the hospital. Not really breathing the best, not wanting to even be here and kind of bummed because its a holiday. Ryan brought all the kids to see me but they were all really tired after their days. So I sent them all home. Ryan said he would come back later and bring me dinner at least. He already gave me this huge card that was like the size of my pillow lol and chocolates. We had agreed to celebrate later even though made him a card and a couple of "romantic" coupons for him to use later like going to the movies and sushi or a back massage. Hey its hard to get resources when you cant leave lol.
Ok, fast forward. I get text saying he is on his way. I get excited just to see his face and to know I will be eating dinner with them. What happened next though blew my mind. He walked in hands full. Put Sparkling Cider and two wine glasses on my hospital tray. He was dressed up and gave me a bad with some comfy but not pj clothes in it to change into. Pulled out a picnic blanket tablecloth and brought Christmas lights. He brought the whole romantic dinner to me. I was blown away. He said to get dressed and he would be back. When he came back he was carrying food from the Niles Hotel that is close by and started setting everything up. Man he looked handsome. I was so taken a back by this gesture. I put on "Sweet Jane" this song we like on my IPhone and he shut off the lights and we sat there by dim light eating filet mignon, amazing green beans, salad, crusted bread, baked potato. It was all so delicious. So romantic. Yep ladies and gentleman I cried. Then I had a breathing issue moment where I was like great....I am ruining all of this. He just rubbed my back and helped me and told me how much he loves me. I just looked at him with tears in my eyes and said he knows how he "takes my breathe away". I love this man. Its hard to surprise me because I am like a secret detective by heart. This definitely surprised me. You should of seen how many nurses snuck in to see the set up lol. It was really cute. I love to brag about my husband because he is the genuine thing. He loves me and I love him. It might of taken me to 30 years old to find him but it was so worth it! Do we have our normal ups and downs. Yes of course....we aren't romantic robots but 99 percent of the time its grand. When he was packing up to get back to the kids I was thinking I didn't want him to leave of course. I wasn't unhappy though because I knew that I would be thinking of this all night long. He did good! He did great! He made me feel like there was no hospital. That there was just the two of us being catered. I am one lucky lady! I am glad I have a strong future ahead of me of showing him everyday how much I love him! Cant wait till he sees the present I had shipped to the house for him. He is going to love it.
So yes....being in the hospital was my best Valentines day. No wonder all my kids are such romantics at heart. They have a great role model to look up too.....
Subscribe anytime...its free. Go to the home page and put in your email. Everytime a blog comes out you will receive one email. Unsubscribe at anytime. Now go do something cool for your Valentine.....
Thursday, February 12, 2015
MIA....missing in non action?
Ahhhh the glories of a low immune system;) Been in the hospital now for three days going on four. Remember how I said I got sick Super Bowl Sunday? It hasn't gone away. Yeah! Lucky me .....not. :)
By day 9 Ryan took me to ER and they said I had bronchitis and asthma on top of it. Three breathing treatments later and medicines, inhalers etc we were sent home. Next day even though I had been on antibodies for days I felt worse. Being in remission from Cushings Disease I still have low immune system being only 6 months post op from brain surgery. Everything else is a thousand times better though. For that I am so terribly grateful! The sickness part though seems to go on and on for me. End up having to stress dose cortisol (since now it's my friend not my enemy) because sickness eats it up.
I thought I would get better but I just couldn't breathe. Coughing so much and so hard I would vomit. Had to breathe really shallow and talk low to not cough. Felt extremely dizzy and not hungry at all. We ended up going back to the ER mid day since my MD was out of town this week. They admitted me into the hospital within 40 minutes. I have been here since.....laying in my hospital bed under that ugly pink blanket ha!
Good news is I am getting better. I am so pumped full of steroids right now. 160 mg cortisol daily. Breathing treatments every hour on the hour and some even in between, antibodies and fluids. Now on day three here I am feeling better even more so and have breathing treatments every two hours. I look a wreck but the only time I am up is to go to the bathroom or shower or I am short of breathe.
Something I learned is when you have Cushings that cortisol masks some things like auto immune problems or asthma etc bec the cortisol is naturally so high from the tumor that you just don't know it. So in remission I am finding out I have asthma.....maybe always have had it but it was masked. Well guys......bronchitis and asthma don't mix.....at all. Just trust me on this one haha.
We are on day 12 of being sick I really am feeling bad. Not health wise but bad that my family is having to keep on keeping on without me. I am very lucky to have the husband I have. He is so generous and kind in all ways and knows that this of course is out of my control. He always asks me "well if it were me in your place what would you do?". I would do anything I could of course but I definitely think I would be way more cranky than he is ha! We really lucked out too bec the day I got admitted Grandma Sally (Ryan's mom and my awesome MIL) was coming up to stay with us. It never ceases to amaze me how she just jumps right in and helps and doesn't gripe about it. With my mom in heaven it really makes me think that she somehow has a touch in her that helps Sally to be there for us when we really need it.....along with the fact she would just do it anyways. My mom would always come to the rescue like that. Anything for me or her grand kids....she would make sure that they were being taken care of so Ryan could help take care of me. Ryan and I are both blessed to have those type of ppl in our lives. I may not have my mom but I do have my second mom Sally. Fiesty and Fun.....just like my mom was. Okay seriously now I am crying lol. I will just say that's from only having 3.5 hours of sleep in 3 days ( gotta love that cortisol....not).
I am really hoping to be home tomorrow but if not tomorrow I pray I am not here on valentines day. Even though no matter where I am I will feel loved by family and friends. I am typing on my I Pad so I don't think I can add pictures to my blog or you would see the beautiful flowers and cards and books I have received. Yesterday I was so taken back because someone I know through Facebook who is a friend of a friend but retired teacher at our kids school came by and gave me flowers, candy, a beautiful chicken soup for soul book ( she doesn't know this but it had special meaning to me because my mom was published in one) and a book to keep me busy. It was beyond sweet. I wanted her to be able to sit and chat but I would start coughing as soon as I talked so that will have to wait for another day.
Then.....in walks in my husband and daughter couple hours later. Man I have to figure out how to add pictures. I seriously almost cried. They looked like they were moving in lol. They brought me a late lunch and flowers, my coveted grapes and orange juice, coffee and then MY P UPPY MOLLY!!!!!!! Ryan had called ahead and asked and begged and they said yes for a little bit. Mind you Molly is only 2 pound Shih Tzu that doesn't shed. She was so happy to see me and I her. To me that was one of the most romantic gestures because it was so thoughtful.....a surprise ....and effort was put into it. Seriously I will always remember that....! I had a great visit with them but I knew they would have to go and pick up and drop off the boys for basketball soon. I am really blessed to have such a good family.
Right as they were leaving I got a delivery. I was really feeling loved. It helped too because the fact that I can't sleep on all this cortisol they are pumping into me I am here a lot by myself. My husband wants to be here more but it's 1 hour drive just to get here and then one back. Plus I really want our household to keep going because our kids are so busy. He constantly is telling me he feels bad bec I tell him to not come back. It makes me feel better that Sally and him can get everything done at home. He just ends up texting me right when he wakes up till he goes to sleep anyways. Lol. Anyways back to my delivery......omg they were the most beautiful flowers!!! As soon as I saw the card I knew who they were from when the front of it said "Farmer Rae" lol. That's a nickname a couple of my friends call me because when I first moved to the ranch I kept collecting all these bottle fed animals......calves.....lambs.....puppies lol.....it's a big joke that they think I need a skunk now or a giraffe. These two friends are always giving me such strength I don't even think they know how much strength they give me. I am very thankful for our families friendship.
So I may be in the hospital.....I may not be sleeping.... But I know I am loved. Not because I am here but because that's how I feel daily. I am hoping tomorrow I will be outta here because I am pretty bored. Ok extremely bored but I will stay till I am well.
By day 9 Ryan took me to ER and they said I had bronchitis and asthma on top of it. Three breathing treatments later and medicines, inhalers etc we were sent home. Next day even though I had been on antibodies for days I felt worse. Being in remission from Cushings Disease I still have low immune system being only 6 months post op from brain surgery. Everything else is a thousand times better though. For that I am so terribly grateful! The sickness part though seems to go on and on for me. End up having to stress dose cortisol (since now it's my friend not my enemy) because sickness eats it up.
I thought I would get better but I just couldn't breathe. Coughing so much and so hard I would vomit. Had to breathe really shallow and talk low to not cough. Felt extremely dizzy and not hungry at all. We ended up going back to the ER mid day since my MD was out of town this week. They admitted me into the hospital within 40 minutes. I have been here since.....laying in my hospital bed under that ugly pink blanket ha!
Good news is I am getting better. I am so pumped full of steroids right now. 160 mg cortisol daily. Breathing treatments every hour on the hour and some even in between, antibodies and fluids. Now on day three here I am feeling better even more so and have breathing treatments every two hours. I look a wreck but the only time I am up is to go to the bathroom or shower or I am short of breathe.
Something I learned is when you have Cushings that cortisol masks some things like auto immune problems or asthma etc bec the cortisol is naturally so high from the tumor that you just don't know it. So in remission I am finding out I have asthma.....maybe always have had it but it was masked. Well guys......bronchitis and asthma don't mix.....at all. Just trust me on this one haha.
We are on day 12 of being sick I really am feeling bad. Not health wise but bad that my family is having to keep on keeping on without me. I am very lucky to have the husband I have. He is so generous and kind in all ways and knows that this of course is out of my control. He always asks me "well if it were me in your place what would you do?". I would do anything I could of course but I definitely think I would be way more cranky than he is ha! We really lucked out too bec the day I got admitted Grandma Sally (Ryan's mom and my awesome MIL) was coming up to stay with us. It never ceases to amaze me how she just jumps right in and helps and doesn't gripe about it. With my mom in heaven it really makes me think that she somehow has a touch in her that helps Sally to be there for us when we really need it.....along with the fact she would just do it anyways. My mom would always come to the rescue like that. Anything for me or her grand kids....she would make sure that they were being taken care of so Ryan could help take care of me. Ryan and I are both blessed to have those type of ppl in our lives. I may not have my mom but I do have my second mom Sally. Fiesty and Fun.....just like my mom was. Okay seriously now I am crying lol. I will just say that's from only having 3.5 hours of sleep in 3 days ( gotta love that cortisol....not).
I am really hoping to be home tomorrow but if not tomorrow I pray I am not here on valentines day. Even though no matter where I am I will feel loved by family and friends. I am typing on my I Pad so I don't think I can add pictures to my blog or you would see the beautiful flowers and cards and books I have received. Yesterday I was so taken back because someone I know through Facebook who is a friend of a friend but retired teacher at our kids school came by and gave me flowers, candy, a beautiful chicken soup for soul book ( she doesn't know this but it had special meaning to me because my mom was published in one) and a book to keep me busy. It was beyond sweet. I wanted her to be able to sit and chat but I would start coughing as soon as I talked so that will have to wait for another day.
Then.....in walks in my husband and daughter couple hours later. Man I have to figure out how to add pictures. I seriously almost cried. They looked like they were moving in lol. They brought me a late lunch and flowers, my coveted grapes and orange juice, coffee and then MY P UPPY MOLLY!!!!!!! Ryan had called ahead and asked and begged and they said yes for a little bit. Mind you Molly is only 2 pound Shih Tzu that doesn't shed. She was so happy to see me and I her. To me that was one of the most romantic gestures because it was so thoughtful.....a surprise ....and effort was put into it. Seriously I will always remember that....! I had a great visit with them but I knew they would have to go and pick up and drop off the boys for basketball soon. I am really blessed to have such a good family.
Right as they were leaving I got a delivery. I was really feeling loved. It helped too because the fact that I can't sleep on all this cortisol they are pumping into me I am here a lot by myself. My husband wants to be here more but it's 1 hour drive just to get here and then one back. Plus I really want our household to keep going because our kids are so busy. He constantly is telling me he feels bad bec I tell him to not come back. It makes me feel better that Sally and him can get everything done at home. He just ends up texting me right when he wakes up till he goes to sleep anyways. Lol. Anyways back to my delivery......omg they were the most beautiful flowers!!! As soon as I saw the card I knew who they were from when the front of it said "Farmer Rae" lol. That's a nickname a couple of my friends call me because when I first moved to the ranch I kept collecting all these bottle fed animals......calves.....lambs.....puppies lol.....it's a big joke that they think I need a skunk now or a giraffe. These two friends are always giving me such strength I don't even think they know how much strength they give me. I am very thankful for our families friendship.
So I may be in the hospital.....I may not be sleeping.... But I know I am loved. Not because I am here but because that's how I feel daily. I am hoping tomorrow I will be outta here because I am pretty bored. Ok extremely bored but I will stay till I am well.
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