Wednesday, October 14, 2015

Why was I MIA for a month?

Long story short....I was kidnapped and taken to an exotic place to have an amazing time. Ok Wake up RAE! That is not what happened! As you all know I have Cushings Disease. Its a tumor that secrets this crazy amount of Cortisol in my body. I have gained obscene amount of weight, lost muscle, have extremely high blood pressure, pre diabetic, and the list goes on. All because of this crazy 4mm tumor on my pituitary.

Lets make this story short okay or your eyes might roll into the back of your head like mine practically did. I was headed to Texas from California for my Brain Surgery. 3 hours before we were leaving to go to the airport I get a call from the hospital and said my insurance (which they had for a month) would not pay for out of state. NOW you tell me???

Sobbing, crying, sniffing, and then picking myself up off the floor I started to make another plan.

Long story short.... Looking at tons of Neurosurgeons we find Dr. Kelly in Santa Monica who is the head of all Neurosurgery there and had TOP RATINGS! So I contact him. God was in my corner as usual and he said he would see me. He has a waiting list but he would see me. He would have to make his endo see me, he would have to see me etc to diagnose me himself with Cushings.

Again long story short. MIL watched the teens and we headed out to Santa Monica only expecting to be gone 1 week for testing, and seeing all the doctors, new MRI, cat scans etc. While we were there though he scheduled surgery (YAH!) It was still a couple days away but not really enough time to drive 13 hours back and then come back again. So MIL said to stay. Between my dad and stepmom, MIL and my husband I everything got taken care of so I could have my surgery.

October 1st I had surgery. Oct 2nd my cortisol plummeted. I was in remission! That tumor was gone! I had the best team of doctors anyone could even ask for! I cannot even express how thorough and amazing that team was!!! I do not have high blood pressure anymore, not diabetic, lost 15 pounds in one week, and slowly will gain muscle back. I am sure I am missing a lot of important details but I just wanted to get all of you back on track to where I am at now.



Did help that we had gotten a vacation rental to stay in while recovering and while we were doing all the testing in Venice Ca. Nice to be able to hear the ocean and we got a mini vacation before hand which will be another blog. :)

I am in remission! I am so thankful! I will be resting and getting better day by day! 3 weeks in bed to start with and I am only on week two. I finally put make up on because its my husbands bday. ha! So that is where I have been. Tried to make it short and sweet and to the point. I am going to write a blog when I am feeling better that's more detailed as I am not really suppose to be up yet but I snuck downstairs while everyone was sleeping this morning. Better get back to bed before the MIL comes after me :) PS she saved our lives watching four teenagers for 3 weeks!

No comments:

Post a Comment